Long QT Syndrome Heart Disease.

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Joined: 27 Oct 2012, 9:13pm

Re: Long QT Syndrome Heart Disease.

Postby landsurfer » 19 Jun 2019, 9:00am

Thanks for your input Martin. I've decided to manage my risk by sensible routing for the next month until i see the Cardiologist.
Fewer hills and more rail paths, towpaths and flatland cycling ...
"There will come a day, when all the lies will collapse under their own weight, and truth will again triumph." Guess Who ...
The Road Goes On Forever

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Location: Near Bicester Oxon

Re: Long QT Syndrome Heart Disease.

Postby Bonefishblues » 19 Jun 2019, 9:09am

landsurfer wrote:Thank you all for your concern but lets not fall out chaps ...

Absolutely not my intention - but when someone's advising, especially on matters of health, then I think it's important that the OP can weigh it correctly, taking this into account.

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Joined: 16 Jan 2010, 10:47am

Re: Long QT Syndrome Heart Disease.

Postby cotswolds » 19 Jun 2019, 3:08pm

landsurfer wrote:Seeing the cardiologist on the 5th August.
Im not worried about this ... i'm annoyed ... i have too much planned for the last 20 healthy years of my life for this to happen.

I know the feeling, I'm about the same age as you and something happened to me about 2 years ago which means where I used to be able to do a hilly 100 mile ride with no training, I now struggle to do 20 miles. I hope what you've got is treatable/manageable.

I nearly posted on this yesterday but hesitated because of the seriousness of the issue, but I'd like to add something to softlip's informed advice. As well as genetic and iatrogenic* causes, heart arrhythmias can be due to mineral deficiencies, potassium, calcium, magnesium and possibly others.

Magnesium deficiency is becoming more common (amount in food has declined over the past 40 years), and as the test is unreliable, under diagnosed. Magnesium is burned up in energy metabolism, i.e if you do something that uses extra calories, you will also need extra magnesium. If you don't get this in your diet (which can be challenging), you will gradually use up your reserves, though it could easily take 10 years to show.

Not saying this applies to you, but I think it's affecting me, and some of your symptoms are similar to mine. I don't suggest any drastic action, but you might like to inform yourself by looking up other possible symptoms to see if other niggles which you may have could been caused by it, to give you more information for when you see a specialist.

The BMJ paper Subclinical magnesium deficiency: a principal driver of cardiovascular disease and a public health crisis is interesting to skim. https://openheart.bmj.com/content/5/1/e000668

A few random quotes:

"most cases of magnesium deficiency are undiagnosed"
"the vast majority of people in modern societies are at risk for magnesium deficiency"
"The existence of subacute or chronic magnesium deficiency is difficult to diagnose."
"Severe signs: Arrhythmias... especially... tachycardia with a prolonged QT interval)."

This may be irrelevant to you, but I think it's worth checking out - and based on what I've read, doctors may not think of it.

Good luck.

*iatrogenic = caused by doctors

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Re: Long QT Syndrome Heart Disease.

Postby bugsburgess » 23 Jul 2019, 8:52pm

I was diagnosed about six months ago with atrial flutter. Since then I have undergone cardio version but it did not improve the atrial flutter. I am 82 years old and have been cycling for fifty years. Does anyone have experience of this and has it affected their cycling ? I do not have any pain or discomfort and it was only a chance visit to my doctor that revealed this condition.