Medical records
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- Posts: 7898
- Joined: 7 Mar 2009, 3:31pm
Re: Medical records
Is the simple answer that NHS IT systems were not designed to enable this important conversation between my medics?
The specialist does write (on paper, through the mail) to my GP, summarising the consulation and I get a copy of this. If the GP needed, say, a copy of an X-ray, could I request one from the hospital and carry it to the surgery?
The specialist does write (on paper, through the mail) to my GP, summarising the consulation and I get a copy of this. If the GP needed, say, a copy of an X-ray, could I request one from the hospital and carry it to the surgery?
It's the same the whole world over
It's the poor what gets the blame
It's the rich what gets the pleasure
Isn't it a blooming shame?
It's the poor what gets the blame
It's the rich what gets the pleasure
Isn't it a blooming shame?
Re: Medical records
That's about right, but it isn't the full answer.Mike Sales wrote: ↑12 Jun 2021, 1:11pmIs the simple answer that NHS IT systems were not designed to enable this important conversation between my medics?
Do you mean the images or the textual report?Mike Sales wrote: ↑12 Jun 2021, 1:11pmThe specialist does write (on paper, through the mail) to my GP, summarising the consulation and I get a copy of this. If the GP needed, say, a copy of an X-ray, could I request one from the hospital and carry it to the surgery?
Jonathan
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- Posts: 7898
- Joined: 7 Mar 2009, 3:31pm
Re: Medical records
It's the same the whole world over
It's the poor what gets the blame
It's the rich what gets the pleasure
Isn't it a blooming shame?
It's the poor what gets the blame
It's the rich what gets the pleasure
Isn't it a blooming shame?
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- Posts: 7898
- Joined: 7 Mar 2009, 3:31pm
Re: Medical records
Is this the all too usual government incomtetence in these IT schemes?Jdsk wrote: ↑12 Jun 2021, 1:14pmThat's about right, but it isn't the full answer.Mike Sales wrote: ↑12 Jun 2021, 1:11pmIs the simple answer that NHS IT systems were not designed to enable this important conversation between my medics?
Jonathan
It's the same the whole world over
It's the poor what gets the blame
It's the rich what gets the pleasure
Isn't it a blooming shame?
It's the poor what gets the blame
It's the rich what gets the pleasure
Isn't it a blooming shame?
Re: Medical records
There isn't a right way of doing this, but it's not uncommon for patients to move images on 'phones, USB sticks etc.
But don't make any assumptions about your GP's ability to display, manipulate or store the images in her information system.
And are you sure that your GP wants to see them?
Jonathan
PS: Happy to discuss privately if that would help.
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- Posts: 7898
- Joined: 7 Mar 2009, 3:31pm
Re: Medical records
Thanks for your explanations.Jdsk wrote: ↑12 Jun 2021, 1:30pmThere isn't a right way of doing this, but it's not uncommon for patients to move images on 'phones, USB sticks etc.
But don't make any assumptions about your GP's ability to display, manipulate or store the images in her information system.
And are you sure that your GP wants to see them?
Jonathan
PS: Happy to discuss privately if that would help.
It's the same the whole world over
It's the poor what gets the blame
It's the rich what gets the pleasure
Isn't it a blooming shame?
It's the poor what gets the blame
It's the rich what gets the pleasure
Isn't it a blooming shame?
Re: Medical records
In my example above (MRI not being shared), I have offered to the consultants to get the raw MRI data/images but they said that the radiographers use exceptionally expensive display screens to carefully examine the images - screens they don't have. So they don't really want the images (they don't have the screens) but want the radiographers to report on when they should have reported on. But my situation the MRIs are head and ear structures and it's the ears they are concerned about rather than some significant sized thing.Jdsk wrote: ↑12 Jun 2021, 1:30pmThere isn't a right way of doing this, but it's not uncommon for patients to move images on 'phones, USB sticks etc.
But don't make any assumptions about your GP's ability to display, manipulate or store the images in her information system.
And are you sure that your GP wants to see them?
Jonathan
PS: Happy to discuss privately if that would help.
I've not asked but believe it would be fairly easy for me to get the raw MRI images (take 10 days) - it's a tick box option of the Subject Access Request form the hospital uses. I've not asked as they'd be of no use to me and just waste hospital time getting them.
Ian
Edit: nb: when I have asked for e.g. the reports from the hospital they send them on disk (they encrypt the files on a CD they post and they seperately e-mail you the unencrypted code for that CD/DVD).
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- Posts: 126
- Joined: 24 Dec 2020, 8:03pm
Re: Medical records
This is utter nonsense: a 65" 4k TV costs £800 and would be more than enough to do the job. Your inner ear could be a foot long on a screen such as that.
Re: Medical records
There's a lot more to optimal viewing than resolution. Reporting by radiologists is preferably done in rooms with managed brightness, multiple monitors. grey scale optimisation, planned ergonomics etc. This is not the case for most clinicians in either primary or secondary care.prestavalve wrote: ↑13 Jun 2021, 10:59amThis is utter nonsense: a 65" 4k TV costs £800 and would be more than enough to do the job. Your inner ear could be a foot long on a screen such as that.
However the original business cases for PACS typically underestimated how much clinicians value direct viewing of the images.
https://en.wikipedia.org/wiki/Picture_a ... ion_system
Jonathan
PS: And interpretive reporting is predominantly performed by radiologists rather than radiographers.
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- Posts: 126
- Joined: 24 Dec 2020, 8:03pm
Re: Medical records
My GP has a comfy swivel chair and a dimmer switch in their office.Jdsk wrote: ↑13 Jun 2021, 11:04am There's a lot more to optimal viewing than resolution. Reporting by radiologists is preferably done in rooms with managed brightness, multiple monitors. grey scale optimisation, planned ergonomics etc. This is not the case for most clinicians in either primary or secondary care.
Re: Medical records
Update on GPDPR:Jdsk wrote: ↑12 Jun 2021, 9:06amThis is a very important point.GayUnicorn wrote: ↑12 Jun 2021, 12:33am I'm confused so if you want hospital and NHS to share scans, blood tests- but not sell data to companies, which do you do as done the online one.
The short answer is that the project under discussion does not support direct care such as you describe. it is only for "planning and research".
https://www.nhsdatasharing.info/caredat ... 9final.pdf
includes:
Most importantly, I can confirm today that, while we are continuing to work on the infrastructure, and communication for the project, we are not setting a specific start date for the collection of data. Instead, we commit to start uploading data only when we have the following in place:
● the ability to delete data if patients choose to opt-out of sharing their GP data with NHS Digital, even if this is after their data has been uploaded;
● the backlog of opt-outs has been fully cleared;
● a Trusted Research Environment has been developed and implemented in NHS
Digital;
● patients have been made more aware of the scheme through a campaign of engagement and communication.
My emboldening.
Jonathan
Re: Medical records
I believe this isn't the first time NHS Digital have had to significantly re-think plans but only in response to public outcry. Makes you wonder about the organisation (or its management). They spend our money on developing these systems and it's then the public privacy reaction that actually makes them think about what they are doing - not good.Jdsk wrote: ↑20 Jul 2021, 9:29amUpdate on GPDPR:Jdsk wrote: ↑12 Jun 2021, 9:06amThis is a very important point.GayUnicorn wrote: ↑12 Jun 2021, 12:33am I'm confused so if you want hospital and NHS to share scans, blood tests- but not sell data to companies, which do you do as done the online one.
The short answer is that the project under discussion does not support direct care such as you describe. it is only for "planning and research".
https://www.nhsdatasharing.info/caredat ... 9final.pdf
includes:
Most importantly, I can confirm today that, while we are continuing to work on the infrastructure, and communication for the project, we are not setting a specific start date for the collection of data. Instead, we commit to start uploading data only when we have the following in place:
● the ability to delete data if patients choose to opt-out of sharing their GP data with NHS Digital, even if this is after their data has been uploaded;
● the backlog of opt-outs has been fully cleared;
● a Trusted Research Environment has been developed and implemented in NHS
Digital;
● patients have been made more aware of the scheme through a campaign of engagement and communication.
My emboldening.
Jonathan
Ian
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- Posts: 2928
- Joined: 11 Jan 2007, 12:20pm
Re: Medical records
It's worse than that. England and Scotland have two completely separate systems, if you live in England and fall ill whilst on holiday in Scotland they have no way to access your records:Mike Sales wrote: ↑12 Jun 2021, 9:12am I was a little surprised that my GP and the local hospital where I am being treated could not share my scans and x-rays online.
Different systems apparently!
This proposal to share my records with other bodies seems to show mistaken priorities.
Caldwell's worth a follow, he's a Consultant at Oban (formerly Worthing), and tweets a lot about what a shambles the NHS bureaucracy is.
“I'm not upset that you lied to me, I'm upset that from now on I can't believe you.”
― Friedrich Nietzsche
― Friedrich Nietzsche
Re: Medical records
I do wonder how many people, like me, wonder "what the hell are you on about?" Online what? NHS records what? Options what?
Never heard of any of it.
A little bit of me wonders what the fuss is about. If you use a service maybe you agree to everything that comes with it. Just a thought.
Never heard of any of it.
A little bit of me wonders what the fuss is about. If you use a service maybe you agree to everything that comes with it. Just a thought.
Re: Medical records
If you are ill I am wondering what choice you have but to use this particular service.mattsccm wrote: ↑24 Jul 2021, 7:35pm I do wonder how many people, like me, wonder "what the hell are you on about?" Online what? NHS records what? Options what?
Never heard of any of it.
A little bit of me wonders what the fuss is about. If you use a service maybe you agree to everything that comes with it. Just a thought.
John