Lichen sclerosis

[gwattie]

Posting this in the women’s section because as far as I’m aware, it doesn’t affect men.
I went on first ride today since being diagnosed with lichen sclerosis, a very painful autoimmune disorder - if you have it you’ll know how painful it is.
Unfortunately, cycling today has triggered pain, burning and itching.
I’m already using steroid cream and pessaries from the doctor, but wondered if any of you cyclists out there suffer like me, and how do you stop cycling making it worse? Thank you …

[Jdsk]

Welcome

Have you already discussed cycling with your doctor, and is that a GP or a dermatologist?

Have you already found a patient support group? Please say if you'd like some help with this.

NHS advice:
https://www.nhs.uk/conditions/lichen-sclerosus/

Jonathan

PS: And it can affect men:
https://www.nhs.uk/conditions/lichen-sclerosus/
https://en.wikipedia.org/wiki/Lichen_sclerosus

[half cog]

Have you measured your sit bones ( ischael tuberosaties ). If not find a shop with measuring equipment. It should consist of a small stool with a plastic top encapsulating a liquid chemical. You sit on it for a few moments the pressure points generated by the bones will leave two black ovals on the pad.Measure the furthest points and the closest points. Re create those measurements on a piece of card and you should now have the basis for two ovals Join the ovals together with two lines and you have what looks like a dog bone. Cut it out and take it with you when you go saddle shopping.You can lay it on the saddle to see exactly how well it supports you.Check your own saddle as well. Buy a saddle with a good centre line cut out that fully supports you.Look at the smp ones.My wife has had this for fifteen years hence I read your listing.( yes we are oldies ) and biked until very recently when old age seemed to catch up with her.As I am obviously a bloke I have to be very carefull what I say on this.However 3 years ago a consultant asked her when she had had her last cancer check. She never had . It seems that 4 % of cases can turn cancerous (or to look on the bright side 96 % dont ) You need a check every twelve months.It took them twelve years to tell that us but luckily as yet all is well. The check up is no more than a visual look over by the doctor Dont give up on the bike.

Regards
Peter