Dupuytren's contracture

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Mick F
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Re: Dupuytren's contracture

Post by Mick F »

Been to the "hostiple" today and was seen by the specialist and her assistant.

I'm offered - and accepted - a treatment by a local anaesthetic to relieve the contraction. If it's a success on one hand, to do the other some weeks later.

Meanwhile, I'm on a waiting list of over 12months - maybe even 18months for surgery.
Waiting list I'm well down on it, because I'm not in danger of incapacity .................. or even of death.

Waiting lists are longer due to operating theatres being closed due to ............guess what?
Covid.
Mick F. Cornwall
philvantwo
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Re: Dupuytren's contracture

Post by philvantwo »

Have you enquired down at the Nuffield as to how much it would cost to go private?
The Mrs was in agony a couple of years ago with her varicose veins, cost me £2.5k, instant relief so it was worth it!
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Mick F
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Re: Dupuytren's contracture

Post by Mick F »

Not thought about going private. Not sure it's worth it as I'm not in pain or incapacitated.
I'm inconvenienced with this, but it doesn't (yet) stop me doing anything except wearing gloves. Mittens might be ok though.
Mick F. Cornwall
francovendee
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Re: Dupuytren's contracture

Post by francovendee »

philvantwo wrote: 1 Sep 2021, 9:32pm Have you enquired down at the Nuffield as to how much it would cost to go private?
The Mrs was in agony a couple of years ago with her varicose veins, cost me £2.5k, instant relief so it was worth it!
I'd have done exactly the same but in a way it's supporting the move to a private health service. Seeing a family member in pain puts everything else into second place though.
I was lucky when I had mine done for similar reasons. I saw the doctor and three weeks later I was under the knife.
I think it would be different today.
Tangled Metal
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Re: Dupuytren's contracture

Post by Tangled Metal »

It can come back. A former colleague has surgery then needed it again a few years later same hand.
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Mick F
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Re: Dupuytren's contracture

Post by Mick F »

Yep.
Aware of the issue.

My left hand is fine except for the pinkie, but the right hand - as well as the pinkie - has "nodules" on the ring finger as well.
It's only a matter of time.

I'm 69 in a month or so, and if this contracture comes back after waiting a year or more - I'll be 70? - may be a few years later that it may return (if it does?) and I could well be into my 80s.

I have no intention or expectation of popping my clogs ever at all, but the writing is on the wall of course.
Mick F. Cornwall
Tangled Metal
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Re: Dupuytren's contracture

Post by Tangled Metal »

Sorry if this offends but I had it that you were older, no idea why. 69 makes more sense considering the riding you do. Not old at all. I knew two guys who did the Bob Graham round at 67yo. Not many youngsters could keep up with them on the fells I can tell you.

The comment about coming back was in case you had unrealistic expectations. My colleague had his start to come back in 2 years after it got up operated on. Same hand, same finger. He was about 65 and decided he'd not be having it done again. Possibly not serious but he said he'd rather have the damned finger cut off!

I hope you get your op soon.
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Mick F
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Re: Dupuytren's contracture

Post by Mick F »

Born November 1952.
Started skool in August? 1956 ....... and I remember being four and turning five at skool.
Old enough thank you! :D
Mick F. Cornwall
PhilD28
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Re: Dupuytren's contracture

Post by PhilD28 »

Tangled Metal wrote: 2 Sep 2021, 4:21pm Sorry if this offends but I had it that you were older, no idea why. 69 makes more sense considering the riding you do. Not old at all. I knew two guys who did the Bob Graham round at 67yo. Not many youngsters could keep up with them on the fells I can tell you.

The comment about coming back was in case you had unrealistic expectations. My colleague had his start to come back in 2 years after it got up operated on. Same hand, same finger. He was about 65 and decided he'd not be having it done again. Possibly not serious but he said he'd rather have the damned finger cut off!

I hope you get your op soon.
There are several different proceedures for Dupytrens all just using local anaesthetic. Some proceedures do have a poor record when it comes to recurrance, as do some surgeons. I had mine done (it was as bad as Micks) 12 years ago at the Pulvertaft hand clinic in Derby by one of their most experienced surgeons, who is also a cyclist, I was in theatre about 15 minutes. There is no sign at all of any recurrance. I highly recommend that NHS clinic and consultant, it is a world leader in this proceedure.
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Re: Dupuytren's contracture

Post by PhilD28 »

You may also be interested in this they are currently recruiting Dupuytrens sufferers for a new trial, this may also provide access to their centre for expert treatment of your condition: Here

"We are recruiting patients for research studies.
Do you have a permanently bent finger? Please ask your doctor in our clinic if you would like to know more details and to be involved in the trials or contact us on our email enquiries@pulvertafthandcentre.org.uk"
Jdsk
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Re: Dupuytren's contracture

Post by Jdsk »

I always recommend patients to look out for research trials for which they are eligible. As well as the contribution to future knowledge and care there is some evidence that outcomes are better whichever treatment you get.

Jonathan
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Mick F
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Re: Dupuytren's contracture

Post by Mick F »

One of my issues - and there are many - is not being able to get cycling mitts on.
Been in bare hands for some time, but it's not good IMO as my habit was to wear cycling mitts.

Why it struck me earlier, I have no idea why it suddenly occurred to me, but turning them inside out and inserting my fingers - especially my pinkies first - in and then "un-rolling" the mitt may work ................ and it does! :D :D :D :D

Sitting here in my dressing gown in the living room, and I did it! :D :D
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Mick F. Cornwall
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Re: Dupuytren's contracture

Post by Paulatic »

You say you get no pain Mick?
I’ve had early signs of it in the right hand for over 5 years now. Nowhere near as bad as yours but recently I’m waking through the night with pain. I give it a rub and clenching the hand relieves it.
Anyone else get this?
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Mick F
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Re: Dupuytren's contracture

Post by Mick F »

Correct, no pain, just inconvenience. My pinkies get caught on things .......... hooked, rather than caught.

PS:
Off on a ride soon with my mitts on. :D
Mick F. Cornwall
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Re: Dupuytren's contracture

Post by simonineaston »

Jdsk wrote: 2 Sep 2021, 5:54pm I always recommend patients to look out for research trials for which they are eligible. As well as the contribution to future knowledge and care there is some evidence that outcomes are better whichever treatment you get.
Jonathan
Interesting idea - how does one find out about them?
S
(on the look out for Armageddon, on board a Brompton nano & ever-changing Moultons)
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