Cycling UK Forum

MikeF wrote:That's good you can now have your wife and daughter to help. If you haven't a booklet you can can look on the website https://prostatecanceruk.org, but you should have been given information to make a choice. Presumably you understand the Gleason scale. Your description wasn't clear but maybe you meant your cancer is on one side of your prostate? Anti androgen treatment would not be good if you are very active. You need to discuss these things with your oncology consultant. Radiation therapy may not be that simple either depending on your condition.

djnotts wrote: ↑23 Mar 2022, 8:55pmI suspect prostate cancer treatment and no doubt others has a pretty rigid age/benefit structure - at over 70 (72) surgery not on offer. Possibly at over 75 or 80 radiotherapy also off the list.

De Sisti wrote: ↑24 Mar 2022, 1:18pmAnother referral letter arrived today, along with a "Your Two Week Wait Appointment" booklet.

Jdsk wrote: ↑24 Mar 2022, 1:21pm

De Sisti wrote: ↑24 Mar 2022, 1:18pmAnother referral letter arrived today, along with a "Your Two Week Wait Appointment" booklet.

Usual advice: write down your questions in advance so that you don't forget any.

Have you already found all that you need about the disease, investigations and lines of treatment? Please let us know if you'd like more.

Jonathan

pga wrote: ↑25 Mar 2022, 5:04pm Thanks once again for all who have commented.

I have asked for a second opinion through my Macmillan nurse. I intend to see my doctor, with my wife, when the cancer doctor's letter has emerged. This will go to my doctor and is copied to myself and gives details of his recommendations.

Many thanks once again. I value your comments.

Psamathe wrote: ↑25 Mar 2022, 5:28pm

pga wrote: ↑25 Mar 2022, 5:04pm Thanks once again for all who have commented.

I have asked for a second opinion through my Macmillan nurse. I intend to see my doctor, with my wife, when the cancer doctor's letter has emerged. This will go to my doctor and is copied to myself and gives details of his recommendations.

Many thanks once again. I value your comments.

Did your specialist say his letter will be copied to you? I ask only because in my own experience sometimes consultant clinical letters are copied to the patient but sometimes not. And for my GP, neither "Patient Access" (online access to your medical records) nor the NHS App provide access to consultant letters. So I now always ask the consultant to copy his clinical letter to me as well as my GP (and they've always been fine with that).

If not you should be able to get a copy from your GP but my own GP has been stroppy on one occasion where I requested printout copy of a blood test results "We've got better things to do than spend time printing out stuff for him!" (I wanted the blood test results for a consultant visit where in the past sometimes consultants have been unable to access GP blood test results on their computer).

Ian

MikeF wrote: ↑26 Mar 2022, 10:07pm

Psamathe wrote: ↑25 Mar 2022, 5:28pm

pga wrote: ↑25 Mar 2022, 5:04pm Thanks once again for all who have commented.

I have asked for a second opinion through my Macmillan nurse. I intend to see my doctor, with my wife, when the cancer doctor's letter has emerged. This will go to my doctor and is copied to myself and gives details of his recommendations.

Many thanks once again. I value your comments.

Did your specialist say his letter will be copied to you? I ask only because in my own experience sometimes consultant clinical letters are copied to the patient but sometimes not. And for my GP, neither "Patient Access" (online access to your medical records) nor the NHS App provide access to consultant letters. So I now always ask the consultant to copy his clinical letter to me as well as my GP (and they've always been fine with that).

If not you should be able to get a copy from your GP but my own GP has been stroppy on one occasion where I requested printout copy of a blood test results "We've got better things to do than spend time printing out stuff for him!" (I wanted the blood test results for a consultant visit where in the past sometimes consultants have been unable to access GP blood test results on their computer).

Ian

Perhaps I'm fortunate with my local surgery in that either reception will print the results or they can be emailed to me. The problem is I can walk to the surgery for a blood test, rather than go 10 miles to the hospital, but the hospital and surgery are in different health care areas so communication between the two is difficult. National HS implies it's one system, but it isn't. It is a collection of separate systems which aren't properly interlinked. The hospital are very good at communicating with me and the surgery, but the surgery does not appear to be good at communicating with the hospital.