Cowsham wrote: 1 Sep 2024, 10:42pm
[XAP]Bob wrote: 30 Aug 2024, 3:29pm
There are hand cycle attachments - but they’re stupidly priced.
I don’t need hand cranks (my legs are fine, it’s my inner ear that’s wrecked), but pedalling from the wheelchair would be difficult - I’d likely just add an electric motor to the front, the challenge then is having enough weight on that front wheel to grip up a hill.
That an awful debilitating ailment. Is there nothing than can be done as a work around ? like some sort of audio signal that can give you a sense of balance ie when you are at optimum posture / balance the tone is like a sign wave etc -- ( it would be like using your sense of hearing to learn balance ) you'll know what I mean.
Nope - though it's actually far less debilitating than you might expect, and certainly far less than many of the variable balance ailments around. I know exactly how I'm going to feel from day to day, it doesn't change. People with BPPV or others don't know what they're going to wake up to in the morning - that's debilitating because you can't plan *anything* with any degree of confidence.
There are three basic systems you use for balance - vestibular (including otolith), visual, and somatosensory information are all used, and each make up for weaknesses in the other. If you have a working vestibular system you can make do with only one of the others (so you can walk in the dark for instance), but without that the others have to sort of "make do". They are *substantially* slower than the inner ear, and in addition to that they are sensitive to gross movements, rather than acceleration, so they can only start to tell you that you're falling once you've already moved some distance.
There is the additional complication that the vestibular system is directly connected (through just three nerves, it's the one of the fastest reflex in the human body, ten times faster than blinking if something touches your eye) to the eyes through the VOR (
https://en.wikipedia.org/wiki/Vestibulo–ocular_reflex). And without any input... I don't have that reflex, at all - which means I have persistent oscillopsia (
https://en.wikipedia.org/wiki/Oscillopsia) - when my head moves, I see the world move in the other direction. And that happens for even *tiny* movements, so when I talk my head and jaw are moving against each other, and the world bounces, if I hold my head really still I can watch my heart beat as the varying pressure in my arteries moves my head minutely.
That sounds awful, but remember I don't have any conflicting signal from my inner ear, so there is no nausea associated. it just makes focussing on things more difficult, and I now have a super power... I am clinically unable to be motion sick

(got to take the wins when they're available).
I can walk... assuming that nothing around me moves, and I have taken a number of precautions to ensure, for example, that I can feel the floor properly - but I do look rather drunk whilst doing so. It's far safer out and about to use a chair, and I've become quite adept at doing so.
Towing the chair is an option, but I had a kiddie trailer (empty) bounce off a "feature" in the road and land on it's side... I won't/can't risk doing that to my chair.